Information Section: Conditions
Condition:
Tourette's Syndrome
Article: Tic Sensitivity and Awareness Exercise for Parents
Source: Leslie E. Packer, PhD 

Article Page  1 of 1

AWARENESS EXERCISE 1 FOR PARENTS

Exercise 1

 As you read the text in the box below, frequently jerk your head back hard and fast. Try to do the head jerk in bursts -- like two or three rapid jerks. Wait a few seconds, and do another hard, fast head jerk, or another burst. Do it frequently throughout your effort to read the material. If you have a physical condition that prevents you from jerking your head back hard, do the exercise the same way but instead of jerking your head back hard and fast, roll your eyes severely to one side. Do the eye roll "tic" in bursts, and do it frequently.

 OK, begin:

 

 

Dear Mom and Dad,

 Thanks for taking the time to try to experience what I feel when I'm trying to read or do my work. It isn't easy, is it? Sometimes I feel like you are impatient with me because it takes me longer to do things, but I really am trying as hard as I can.

 I really love you both and don't want to embarrass you with your friends or when we're all out together, but I can't seem to stop the movements or sounds. Please understand. I'm just a kid and I don't understand this any more than you do.

 How did you do? Did you experience interference in trying to read? Did you get dizzy or nauseous at all? Did you feel frustrated? If you were your child and trying to read, might you get fatigued or irritable after a while? Would you give up? Remember that you were only asked to read a few sentences.

 Tics of the eyes, head, and neck are the most common tics. Allow extra time for activities where tics might interfere. Give your child opportunities to get up and move around to release tics if they need to and if it helps. If your child is older, work collaboratively with them to help them to learn to manage tics that might be socially problematic (such as spitting). Help your child accept that they have tics but don't make the tics the central part of their lives.

AWARENESS EXERCISE 2 FOR PARENTS

You will RealPlayer or some program capable of playing a .wav file to do this exercise. Please adjust the volume on your computer speakers to a comfortable level.  

When you click on the link below, you will hear a public service announcement from a national organization. The announcement was recorded in 2000. As you listen to the recorded announcement, you will again have bursts of tics, but this time, you will have a vocal tic and will have to yell out, "hooo-boy" in bouts (e.g., repeat "hooo-boy" three times, wait a few seconds, and then do it a few times, wait a few seconds and do it twice, etc.).

 OK, when you're ready to start, click this link.

 So how did you do with this one?  Were you able to listen and to process what you were hearing while you were ticcing? How did your vocal tic affect you, and how might your child's vocal tics be affecting him or her?

 Feel free to share this exercise with other parents if you think it will help increase their awareness. 

Information Section: Conditions
Condition:
Tourette's Syndrome
Article: Tic Sensitivity and Awareness Exercise for Parents
Source: Leslie E. Packer, PhD 

Article Page  1 of 1

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